A Family Resource
As the parents of two children impacted by Citrate Transporter Disorder SLC13A5, Kim and Zach Nye have a tremendous respect for all who are affected by this disease. This is why TESS Research Foundation was established—to help. We have formed this Foundation to share information, progress diagnosis, and find treatments and a cure for this disease whose symptoms are well known to us, but whose effective treatment and cure are still elusive. We encourage you to share your stories with us so we can share them with the research community and to those in search of answers. We are all stronger together than we can ever be alone.