Research for the cure
is funded by YOU


TESS Supports


Join our registry!

Newly diagnosed?

Exciting news! TESS is now part of the

Chan Zuckerberg Initiative’s

Rare As One Network

— a group of 30 patient-led organizations

that are accelerating research and driving

progress in the fight against rare diseases.

Read More

TESS Research Foundation

​​Our Goal is to find treatments for the genetic disease SLC13A5 Deficiency.

TESS Research Foundation is a 501(c)(3) tax exempt public charity. Our mission is to help families affected by SLC13A5 Deficiency. SLC13A5 Deficiency (aka Citrate Transporter Disorder) is a newly discovered genetic cause of epilepsy, and as such, TESS Research Foundation is building a patient-centered network from the ground up. We are determined to diagnose, treat, and ultimately cure SLC13A5 Deficiency. We do this by funding cutting-edge research and connecting families, doctors, and researchers.

The Founders

Kim and Zach Nye live in California with their four young children. Two of their children, Tessa and Colton, recently received SLC13A5 Deficiency diagnoses.

Despite uneventful pregnancies and deliveries, Tessa and Colton both began having seizures the day they were born. For a decade, the underlying cause of Tessa’s seizures and developmental problems remained unknown, despite consulting dozens of specialists across the country and trying dozens of medications. Tessa continues to have hundreds of seizures daily. When Colton was born in 2013 and also began having seizures, our team of experts realized the problem was genetic and were able to isolate a genetic marker for the disease: SLC13A5. Finding a genetic marker is a huge step in finding a cure.

The Nye family started TESS Research Foundation in order to improve the lives of those living with the genetic neurological disorder SLC13A5. TESS Research Foundation aims to raise awareness, unite families affected by the disease, and fund research in order to better understand this disease.​

Sign-up to Receive Updates

Tax Information

TESS Research Foundation

A 501(c)(3) nonprofit corporation

Tax ID Number: 47-3108868

Treatments for Epilepsy and Symptoms of SLC13A5

Contact Information

Kimberly Nye
655 Oak Grove Ave #53
Menlo Park, CA 94026

(650) 521-2279

E-Mail Kim