Entries by primary

Three Fun Crafts For Everyone

By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all have different ability levels, we can have a hard time finding crafts to do that we all enjoy. Luckily, there […]

A Day in the Life of a Family Living with SLC13A5

Maureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that.  Here is a glimpse of a day in the life of a family living with SLC13A5. During the summer, my husband and I wake […]

Introducing the TESS Research Foundation Blog! 

We are excited to bring you more voices from our TESS Community. Here we will feature blog posts from SLC13A5 Deficiency Family Members, Doctors, Researchers, Volunteers, and members of our Board of Directors. We hope this will help raise awareness about what it is like to live with SLC13A5 Deficiency and highlight the milestones on our path […]