By: Kim Nye – Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My friends and family are always asking for gift ideas, especially for Tessa (15) and Colton (6) who have SLC13A5 Deficiency. To make it a little […]
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By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all have different ability levels, we can have a hard time finding crafts to do that we all enjoy. Luckily, there […]
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Prasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids ready for school. We help them go to the restroom and brush their hair. They like to pick out their own clothes, so we help […]
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Deepti Dubey, PhD is a Scientific Officer for TESS Research Foundation. Here Dr. Dubey discusses how the work that TESS Research Foundation spearheads is having a broader impact on our epilepsy community and on neurological disease in general. The Search for A Cure TESS Research Foundation was formed to fund the science to discover […]
Maureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that. Here is a glimpse of a day in the life of a family living with SLC13A5. During the summer, my husband and I wake […]
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Shopping for Kids of All Abilities
/0 Comments/in family /by primaryBy: Kim Nye – Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My friends and family are always asking for gift ideas, especially for Tessa (15) and Colton (6) who have SLC13A5 Deficiency. To make it a little […]
Three Fun Crafts For Everyone
/3 Comments/in family /by primaryBy: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all have different ability levels, we can have a hard time finding crafts to do that we all enjoy. Luckily, there […]
A Day in the Life of a Family Living with SLC13A5 – Vattikuti Family
/1 Comment/in family /by primaryPrasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids ready for school. We help them go to the restroom and brush their hair. They like to pick out their own clothes, so we help […]
How TESS Impacts the Wider Medical Community–by Deepti Dubey, PhD
/0 Comments/in research /by primaryDeepti Dubey, PhD is a Scientific Officer for TESS Research Foundation. Here Dr. Dubey discusses how the work that TESS Research Foundation spearheads is having a broader impact on our epilepsy community and on neurological disease in general. The Search for A Cure TESS Research Foundation was formed to fund the science to discover […]
A Day in the Life of a Family Living with SLC13A5
/0 Comments/in family /by primaryMaureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that. Here is a glimpse of a day in the life of a family living with SLC13A5. During the summer, my husband and I wake […]