https://tessresearch.org/live/wp-content/uploads/2020/07/TESS-Superhero-Tessa.png9001240primaryhttps://tessresearch.org/live/wp-content/uploads/2015/11/tess-logo_horz_02-01-01-300x95.pngprimary2020-07-03 22:43:092020-07-03 22:44:58Tessa's Superhero Story
Maria is the mother of Alice (5-years-old), who has SLC13A5 Deficiency. Maria and Alice live in Luxembourg, with Alice’s father, sister, and maternal grandmother. A Day in the Life Alice is our rare pearl – this is what we call her, since SLC13A5 Deficiency is so rare. Even if she can’t walk or talk, she […]
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Erika and Andrew are the parents of Ellie, who has SLC13A5 Deficiency. Our days with Ellie (who is almost the big 4!) are typically filled with a lot of love, patience, and laughter. We like to call her our little Sour Patch kid. She is full of spunk, stubbornness, and mischievousness, but she is also […]
https://tessresearch.org/live/wp-content/uploads/2020/05/78DBB6C6-86D7-4347-86AF-643F8DB85019-e1589919304493.jpeg489499primaryhttps://tessresearch.org/live/wp-content/uploads/2015/11/tess-logo_horz_02-01-01-300x95.pngprimary2020-05-19 20:34:382020-05-19 20:34:38A Day in the Life of a Family Living with SLC13A5 - Prestine/Pae Family
By: Kim Nye – Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My friends and family are always asking for gift ideas, especially for Tessa (15) and Colton (6) who have SLC13A5 Deficiency. To make it a little […]
https://tessresearch.org/live/wp-content/uploads/2019/11/IMG_3727-e1574729394609.jpg40323024primaryhttps://tessresearch.org/live/wp-content/uploads/2015/11/tess-logo_horz_02-01-01-300x95.pngprimary2019-11-27 19:18:242019-11-27 20:54:00Shopping for Kids of All Abilities
By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all have different ability levels, we can have a hard time finding crafts to do that we all enjoy. Luckily, there […]
https://tessresearch.org/live/wp-content/uploads/2019/08/colton-craft.jpg40323024primaryhttps://tessresearch.org/live/wp-content/uploads/2015/11/tess-logo_horz_02-01-01-300x95.pngprimary2019-09-07 00:27:182019-09-07 00:27:18Three Fun Crafts For Everyone
Tessa’s Superhero Story
/0 Comments/in Superheroes /by primaryA Day in the Life of a Family Living with SLC13A5 – Geslin Family
/0 Comments/in Families /by primaryMaria is the mother of Alice (5-years-old), who has SLC13A5 Deficiency. Maria and Alice live in Luxembourg, with Alice’s father, sister, and maternal grandmother. A Day in the Life Alice is our rare pearl – this is what we call her, since SLC13A5 Deficiency is so rare. Even if she can’t walk or talk, she […]
A Day in the Life of a Family Living with SLC13A5 – Prestine/Pae Family
/1 Comment/in Families /by primaryErika and Andrew are the parents of Ellie, who has SLC13A5 Deficiency. Our days with Ellie (who is almost the big 4!) are typically filled with a lot of love, patience, and laughter. We like to call her our little Sour Patch kid. She is full of spunk, stubbornness, and mischievousness, but she is also […]
Shopping for Kids of All Abilities
/0 Comments/in Families /by primaryBy: Kim Nye – Mom to four great kids, ages 6 to 15. The holidays are here! It can feel difficult to shop for a child with developmental delays. My friends and family are always asking for gift ideas, especially for Tessa (15) and Colton (6) who have SLC13A5 Deficiency. To make it a little […]
Three Fun Crafts For Everyone
/3 Comments/in Families /by primaryBy: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all have different ability levels, we can have a hard time finding crafts to do that we all enjoy. Luckily, there […]