Prasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids ready for school. We help them go to the restroom and brush their hair. They like to pick out their own clothes, so we help […]
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Deepti Dubey, PhD is a Scientific Officer for TESS Research Foundation. Here Dr. Dubey discusses how the work that TESS Research Foundation spearheads is having a broader impact on our epilepsy community and on neurological disease in general. The Search for A Cure TESS Research Foundation was formed to fund the science to discover […]
Maureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that. Here is a glimpse of a day in the life of a family living with SLC13A5. During the summer, my husband and I wake […]
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Hi my name is Lily and I am 11 years old. My siblings, Tessa and Colton both have SLC13A5 Deficiency, which is more commonly known as seizures. I love both my siblings and only hope for the best for them and other people like them. I wrote this memoir in my 5th grade class, and […]
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We are excited to bring you more voices from our TESS Community. Here we will feature blog posts from SLC13A5 Deficiency Family Members, Doctors, Researchers, Volunteers, and members of our Board of Directors. We hope this will help raise awareness about what it is like to live with SLC13A5 Deficiency and highlight the milestones on our path […]
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A Day in the Life of a Family Living with SLC13A5 – Vattikuti Family
/1 Comment/in family /by primaryPrasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids ready for school. We help them go to the restroom and brush their hair. They like to pick out their own clothes, so we help […]
How TESS Impacts the Wider Medical Community–by Deepti Dubey, PhD
/0 Comments/in research /by primaryDeepti Dubey, PhD is a Scientific Officer for TESS Research Foundation. Here Dr. Dubey discusses how the work that TESS Research Foundation spearheads is having a broader impact on our epilepsy community and on neurological disease in general. The Search for A Cure TESS Research Foundation was formed to fund the science to discover […]
A Day in the Life of a Family Living with SLC13A5
/0 Comments/in family /by primaryMaureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that. Here is a glimpse of a day in the life of a family living with SLC13A5. During the summer, my husband and I wake […]
Different – A Memoir by Lily About Her Sister, Tessa
/6 Comments/in family /by primaryHi my name is Lily and I am 11 years old. My siblings, Tessa and Colton both have SLC13A5 Deficiency, which is more commonly known as seizures. I love both my siblings and only hope for the best for them and other people like them. I wrote this memoir in my 5th grade class, and […]
Introducing the TESS Research Foundation Blog!
/0 Comments/in Uncategorized /by primaryWe are excited to bring you more voices from our TESS Community. Here we will feature blog posts from SLC13A5 Deficiency Family Members, Doctors, Researchers, Volunteers, and members of our Board of Directors. We hope this will help raise awareness about what it is like to live with SLC13A5 Deficiency and highlight the milestones on our path […]