Maureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that. Here is a glimpse of a day in the life of a family living with SLC13A5. During the summer, my husband and I wake […]
Hi my name is Lily and I am 11 years old. My siblings, Tessa and Colton both have SLC13A5 Deficiency, which is more commonly known as seizures. I love both my siblings and only hope for the best for them and other people like them. I wrote this memoir in my 5th grade class, and […]
We are excited to bring you more voices from our TESS Community. Here we will feature blog posts from SLC13A5 Deficiency Family Members, Doctors, Researchers, Volunteers, and members of our Board of Directors. We hope this will help raise awareness about what it is like to live with SLC13A5 Deficiency and highlight the milestones on our path […]
A Day in the Life of a Family Living with SLC13A5
/0 Comments/in family /by primaryMaureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that. Here is a glimpse of a day in the life of a family living with SLC13A5. During the summer, my husband and I wake […]
Different – A Memoir by Lily About Her Sister, Tessa
/6 Comments/in family /by primaryHi my name is Lily and I am 11 years old. My siblings, Tessa and Colton both have SLC13A5 Deficiency, which is more commonly known as seizures. I love both my siblings and only hope for the best for them and other people like them. I wrote this memoir in my 5th grade class, and […]
Introducing the TESS Research Foundation Blog!
/0 Comments/in Uncategorized /by primaryWe are excited to bring you more voices from our TESS Community. Here we will feature blog posts from SLC13A5 Deficiency Family Members, Doctors, Researchers, Volunteers, and members of our Board of Directors. We hope this will help raise awareness about what it is like to live with SLC13A5 Deficiency and highlight the milestones on our path […]