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Three Fun Crafts For Everyone

By: Lily N. Hi my name is Lily, and I am 12 years old. Two of my siblings have SLC13A5 Deficiency, which means they have seizures and a harder time learning. Since my siblings all have different ability levels, we can have a hard time finding crafts to do that we all enjoy. Luckily, there […]

A Day in the Life of a Family Living with SLC13A5 – Vattikuti Family

Prasad and Anu are the parents of Sanjitha, their daughter, and Abhinav, their son, both of whom have SLC13A5. By 6:00 am, we start the process of getting our kids ready for school. We help them go to the restroom and brush their hair. They like to pick out their own clothes, so we help […]

How TESS Impacts the Wider Medical Community–by Deepti Dubey, PhD

Deepti Dubey, PhD is a Scientific Officer for TESS Research Foundation. Here Dr. Dubey discusses how the work that TESS Research Foundation spearheads is having a broader impact on our epilepsy community and on neurological disease in general.   The Search for A Cure TESS Research Foundation was formed to fund the science to discover […]

A Day in the Life of a Family Living with SLC13A5

Maureen Grover and her husband, Hans, have three children, Landon, Brayden, and Alaina. Both Brayden and Alaina have SLC13A5 Deficiency, and the severe epilepsy and developmental delays that come with that.  Here is a glimpse of a day in the life of a family living with SLC13A5. During the summer, my husband and I wake […]

Different – A Memoir by Lily About Her Sister, Tessa

Hi my name is Lily and I am 11 years old. My siblings, Tessa and Colton both have SLC13A5 Deficiency, which is more commonly known as seizures. I love both my siblings and only hope for the best for them and other people like them. I wrote this memoir in my 5th grade class, and […]