Kimberly Nye, President
Kim lives in California with her husband, Zach, and their four kids: Tessa, Lily, Maggie and Colton. Both Tessa and Colton have SLC13A5 mutations. Kim holds a BA from Princeton. She was a graduate student at Oxford University when she gave birth to her first daughter, Tessa. For the last 10 years, Kim has been searching for the underlying cause of Tessa and Colton’s seizures and movement problems. This search has involved a tremendous team of dedicated doctors and researchers and their participation is key as we move beyond diagnosis and look to treatment options for people with SLC13A5 mutations. Kim and her family are eager to share their story and connect with other families facing citrate transporter disorders. Over the last decade Kim has been involved with the pediatric neurology and medical genetics community in the United States. She is currently on the Steering Committee for REN and she serves as a Lay Reviewer for CURE.
Zachary Nye, PhD, Treasurer
Zach is a financial economist and senior consultant at Stanford Consulting Group. He holds degrees from Princeton University, London Business School and University of California, Irvine. Zach is the parent of 2 children with SLC13A5 mutations.
Jordan Lodato-Hunt, MSW, LCSWA, Secretary
Jordan currently works for the Duke Clinical Research Institute in North Carolina. She holds a BA in Psychology from Stanford University and her MSW from UNC at Chapel Hill. Most of Jordan’s previous research experience has pertained to health and development, and especially the psychosocial impact of chronic illness.
Courtney Lodato Alberti, Director
Courtney manages public relations for the $5 billion Stanford University Medical Center Renewal Project, which includes constructing the new Stanford Hospital, expanding Lucile Packard Children’s Hospital Stanford and replacing School of Medicine facilities. A graduate of University of California, Santa Barbara, Courtney worked as a journalist before beginning her career in PR and was named one of PR Week’s “Top 40 Under 40”.
Adam Alberti, Director
Adam is an Executive Vice President at Singer Associates, Inc. Adam is a graduate of the University of California, Berkeley, where he graduated with distinction and was awarded a BS in both Political Science and Environmental Sciences Policy Management. Adam is also a Veteran of the Persian Gulf War, where he served as a Navigator on board the historic “Mighty MO,” USS Missouri, BB-63 and the USS Long Beach, CGN-9.
Paula Gani, J.D., Director
Paula Gani is a Vice President and Assistant General Counsel at Globalfoundries, where she oversees the U.S. legal team. She holds a B.A. in Human Biology from Stanford University and a J.D. from the University of Wisconsin. Paula has handled health policy matters for a local community organization on a pro bono basis, and she currently serves as a parent advisory board member to the Stanford Autism Center at Packard Children’s hospital.
Dennis McDonnell, Director
Dennis served as a Director and CFO of Eclipse Data Technology, Inc., a leading provider of DVD and Blu-Ray Replication from 2002 until 2009. Prior to that, he was the President, CEO and Chairman of the Board of Trace Products Inc., a publicly traded company that was the leading provider of magnetically recorded digital replication equipment from 1985 – 2005. From 1983 – 1985, he was Area Software Center Manager for Hewlett Packard. Dennis is excited to learn about the world of rare diseases and to help raise awareness about SLC13A5.
Kevin McDonnell, Director
Kevin McDonnell is CEO and Chairman of Eclipse Data Technologies, an optical media equipment manufacturing company he founded in 1995. Eclipse provides products to the optical disc and entertainment industries. The majority of CD, DVD, and Blu-Ray discs produced in the world are done so with Eclipse products. Prior to that, Kevin founded the magnetic media replication company Trace Products where he served as Vice President of R&D and Director from 1984 until 1995. He holds a BS in Computer Science from the University of California Berkeley.
Since 1994 Kevin has been a volunteer pilot for the Alameda County Sheriff’s Air Squadron and has served as Commander of the Western States Association of Sheriff’s Air Squadrons since 2016.
Judi Rees, Director
Judi has a long history of serving on nonprofit boards, including Make-A-Wish, Adalyn Jay Foundation and the Ronald McDonald House. She is inspired by her beautiful granddaughter Maggie, who has a rare genetic epilepsy, to help our pediatric epilepsy community.
Lee Scheuer, Director
Lee Scheuer is founder and Chairman of International ProInsurance Services, Menlo Park, CA for the past 43 year. Lee received an undergraduate degree from the University of Miami, and a graduate degree from American College. Before beginning his career with New York Life, Lee was a teacher of for two years working with special needs teens.
Lee has served on many group advisory boards of insurance companies such as Travelers Insurance Company, The Guardian Life Insurance Company, Anthem Blue Cross and Blue Shield of California. He has also served on the Boards of many local community organizations such as the Sequoia YMCA, International Committee and The American Youth Soccer Organization. Lee is the owner of the Bennett T. Scheuer Learning Center a Special Education facility in Camden, Maine and a supporter of the Literacy Program of Mid-Coast Maine.
Lee and his wife Kim have two children and 3 grandchildren which bring him a tremendous amount of Joy to his life
Lee enjoys spending time with his family, camping (preferable near streams, rivers or oceans), fishing, snow skiing, sailing, woodworking, traveling and spending time and assisting with special needs children/adults.
Alexandra Abrams, MD, Director
Dr. Abrams is a physician who is board certified in Pediatrics as well as Pediatric Hematology, Oncology, and Stem Cell Transplantation. She received a BA in biology with Honors from UCLA, where she worked in a joint UCLA-Caltech lab studying pediatric CNS tumor-derived stem cells and contributed to the early characterization of these cells. She went on to earn her medical degree from UCSD and then completed both a General Pediatrics Residency and Pediatric Hematology, Oncology, and Stem Cell Transplant Fellowship at Lucile Packard Children’s Hospital at Stanford University. She has subsequentlyworked in acute care and outpatient settings within both Pediatric Oncology as well as General Pediatrics. Dr. Abrams has received multiple teaching awards from the Stanford University School of Medicine and served as a Lucile Packard Children’s Hospital Endowed Clinical Fellow as well as the Tashia and John Morgridge Endowed Fellow for her research regarding tumor progenitor cells within Osteosarcoma. She has also participated in numerous international medical missions as well as managed a free medical clinic proving care to underserved populations.