Kimberly Nye, Executive Director
Kim lives in California with her husband, Zach, and their four kids: Tessa, Lily, Maggie and Colton. Both Tessa and Colton have SLC13A5 mutations. Kim holds a BA from Princeton. She was a graduate student at Oxford University when she gave birth to her first daughter, Tessa. Kim and her family are eager to share their story and connect with other families facing citrate transporter disorders. Kim has been involved with the pediatric neurology and medical genetics community in the United States for more than a decade. She is currently on the Steering Committee for REN and she serves as a Lay Reviewer for CURE. If you have any questions, send Kim an email.
Deepti Dubey, PhD, Scientific Officer
Dr. Dubey is scientific officer for TESS Research Foundation. She received her PhD from Indian Institute of Technology, Kanpur, India. She later did her postdoctoral training in the department of Neurology at Stanford University. Her research career is focused on understanding underlying molecular mechanisms of epileptic disorders including Lafora Disease, a rare genetic form of progressive myoclonus epilepsy and temporal lobe epilepsy induced by brain insults using cell and animal models. Dr. Dubey is interested in applying her research experience to facilitate understanding of rare genetic disorders like SLC13A5 deficiency along with exploring immediately available treatment options. You can email Deepti here.
Cat McDonnell, MA, Director of Communications
Catherine is the Director of Communications for TESS Research Foundation. She has a work background in Communications, Sales, Business and Marketing and a Master’s Degree in Communication Management from University of Southern California. She is the aunt of two children with SLC13A5 Deficiency and knows how devastating this disease is for families. Catherine is determined to help raise awareness, connect families and find a cure.
Nicole Windisch, Family Outreach
Nicole lives in New York with her husband, Rich and their 3 kids, James, Matthew and Meredith. Meredith has the SLC13A5 mutation. Nicole found the TESS Research Foundation while researching Meredith’s condition. Since then, she has taken an active role in raising awareness and fundraising. Nicole created our silicone bracelet fundraiser and is determined to help find a cure.
Tammy Wester, Community Outreach
Tammy heads our community outreach and volunteer program. She has been with TESS Research Foundation since it started, and she is the queen of organization. In addition to raising awareness at community events, she spearheads our snail mail communications.
Emily Hsu, Webmaster
Emily is our webmaster. We look forward to your feedback as our website continues to evolve. Please email Emily with any web related questions or comments.